The Health Link : Morning Club: Strengthening the ERN framework to support rare disease patients in Europe

Strengthening the ERN framework to support rare disease patients in Europe

with Dr. Holm Graessner, European Reference Network for Rare Neurological Diseases, Prof. Robert Nisticò, Committee for Orphan Medicinal Products (COMP), EMA, Dominique Sturz, Alliance Pro Rare and Dr. Matthias Wilken, Bundesverband der Pharmazeutischen Industrie

Thursday, 20 May 2021
8:30am – 9:30am CET
Virtual Zoom meeting

We are pleased to invite you to the fourth edition of the Incisive Health Morning Club. The discussion will be introduced by Francesca Scassellati Sforzolini, Managing Director of Incisive Health Brussels and moderated by Eduardo Pisani, Strategic Advisor to Incisive Health. This edition will be organised in collaboration with The Health Link, a network of health policy and communications experts working in Europe and beyond.

With this discussion, we would like to draw attention to the important role of the European Reference Networks (ERNs) in supporting rare disease patients in Europe. During our 1 hour virtual breakfast, our experts will leverage the current debate around rare diseases, highlight national perspectives and explore the importance of ERNs by giving a voice to patients, healthcare professionals, industry representatives, academia, and other key stakeholders.